Of course nobody has suggested what will happen if it hasn't worked. I don't know whether they wade in with more of the same or if they give it up as a lost game and just do the occasional round of chemo to hold it all at bay for as long as possible. Along the way I have lost a fair bit of weight and one of the consequences of that was that they needed to make me another full face mask to use for targeting the x-rays (or whatever rays they bombard me with). That meant a second CAT scan and the doctor in Alicante commented today, that when they had done that second scan, the swelling in my lymph nodes had subsided significantly - I think that was a sort of snippet of good news.
I don't feel well. I'm not really in such a bad way though I suspect I smell badly. More than anything I feel a bit sorry for myself. I feel cold even when it obviously isn't. I haven't drunk or eaten anything for a whole month now. In fact, at the cinema on Tuesday evening there was an advert for Coca Cola. I'm not a huge Coke fan, it's OK, but, as I was watching that advert I'd swear my tongue was hanging out and I could imagine the taste. I do keep trying to eat or drink. I have a spoonful of yogurt or a mouthful of tea and instead of the expected, pleasant taste I find myself spitting out the acrid fluids and spending the next 10 minutes doing a Barney Rubble impersonationation - urgh, urgh. I'm told to expect another month or two feeding through the stomach tube which often makes me vomit or if it doesn't actually make me vomit it makes me wretch and cough and spit and curse the creation of humankind.
Sleeping is good except that the downside is the state of my mouth when I awake. I've learned that my best bet is to do nothing. No water to lubricate my throat, no brushing my teeth, no mouthwash. Just wait for an hour or so until my mouth is a sort of acceptable cauldron of terrible tastes and then have a go with the brushing, gargling etc. If I don't throw up in the process then that's a definite win. And, just to finish off my neck has started to peel. If you've always lived with factor 50 sun protection you won't understand this but the old style holiday suntan was to peg yourself out, when you got your fortnight off, until your skin turned bright red. You'd try to ameliorate the pain with camomile lotion (long before after sun treatments) but, if you'd overdone it you'd pay with blisters and boils on your skin full of liquid. As those burst your skin would peel off leaving various coloured blotches. The radio has done something similar but the effects have only really shown up big time in the last couple of days.
And that's just me. Living alongside someone who goes to bed at 10 pm, who hasn't done a stroke in the garden or been shopping or done any of the other tens and tens of household upkeep and maintenance jobs for six or seven weeks and who doesn't want to go to get a drink or a meal or to a fiesta must be a little wearing to say the least for my long suffering partner.
Well done. The first 3 years after treatment are worst. No only kidding. I'm sure things will get better very soon !!!
ReplyDeleteSo sorry to read this post Chris. You sound as though you are being very strong about it all. It's good you have Maggie at your fide. Love to you both. Jenny 🙏
ReplyDeleteChris, you are an inspiration and so brave. Your blogs are very informative and candid. Pat and I wish you a speedy recovery so you can stick two fingers up to cancer. 💕
ReplyDeleteOh my dear, things will get better from now on, it will all have been worth it
ReplyDeleteI’m so pleased you’re treatment is over.
ReplyDeleteI can’t imagine what torture you have endured.
Not being able to have a drink is unimaginable.
I look forward to your next blog and positive news.
Thinking of you Chris. I do hope the news will be good in the future and that you can enjoy some food and drink in the future.
ReplyDeleteBlimey. Sounds horrendous Chris. As a lover of good food and fine wine… it’s a tough assignment.
ReplyDeleteKeep up the blog and I’m really hoping things improve.
Great that the treatment is over…. But the recovery path sounds hard in the soul as well as the body. I wonder - if instead of trying something in your mouth that you associate with pleasure, if the reverse might be true is you try something that you’d normally have associated with something unpleasant! But why add such an experience? Going to bed for 10pm is an achievement for us - Roy has to persuade me all too often that I can’t possibly go before 9:30 but we often admit defeat. The jobs will still be there and I hope Maggie isn’t running herself too ragged. Wishing you strength and taste and a new layer of unblistered skin in the near future!
ReplyDeleteSorry to hear you are suffering....my husband was exactly the same ..I bought all sorts of foods to entice him but it was all like cardboard..the good news is the taste did come back and he can now enjoy food...he was red wine lover and can't drink that now but ok with white wine and can't stand oranges and orange flavour ...strange ..but all good. Things are going to get better...stay positive xx
ReplyDelete