Life in Culebrón

You may have noticed that the tagline at the top of this blog has changed. It used to say old, fat, white haired. Through absolutely no effort on my part I've lost a fair bit of weight. In fact so much so that there was some doubt about whether my feeding tube could be removed today. Patri, the nutritionist, obviously thinks I'm not making enough effort to pile in those calories. I'd like to think it was my vivid description of what I'd eaten on the tapas trail in Yecla yesterday or the slightly inflated description of the nature of Shepherd's Pie, which swung the balance. Actually it probably wasn't as my Spanish was particularly stumbling and faltering today.  The nutritionist didn't remove the plumbing herself. She had to call for a doctor. I could see why. It was specialist work. The tube I've had in since August last year looked exactly like that clear plastic stuff that blows bubbles in home aquariums. The tube was about 30 cms long had a junction ...

Maggie tells me I should be explicit and say that I have been given the cancer all clear. She tells me that a sentence built into the story of the Imserso holiday is not good enough. That all the people who have shown concern need to be told clearly and succinctly. Clearly fine, succinctly - not likely given my style. On 10 January I saw the oncologist at Elda Hospital after doing a PET -TAC at the Vinalopó Hospital in Elche a couple of days before. The oncologist told me that the results showed that the lesion that had been in my throat, in August, was no longer there - the cancer was gone. Every few months I will have to have another TAC scan and then go to see the oncologist to see whether the cancer has come back. I asked what chance there was of the cancer returning and he said 40%. That puts the odds in my favour. I thought I was done there but Maggie tells me that I should tell you that I'm still having trouble eating. That, even now, I'm taking most food through a stoma...

Just a quick update on my throat cancer. For new readers, during the summer, I got to see an otorrino (Ear Nose and Throat specialist) and, after a few tests he said I had a throat cancer. He passed me to an oncólogo (Cancer specialist). They ordered up a few tests, decided that the cancer was just in my throat and lymph nodes and set me up for a course of 33 sessions of radiotherapy and three of chemotherapy. The radio sessions were in Alicante and the ambulance service took me there for most of the sessions. The chemo was in Elda. Along the way I had a picc port installed in my arm so they could take blood from my veins and put other liquids in. They also put in a PEG tube so I could put "milk shake" type food directly into my stomach when my throat became too inflamed to eat through my mouth. There have been a couple of snags along the way; I ended up on a hospital ward for three or four days because I kept throwing up and the dehydration was damaging my kidneys, but, gene...

I just had three or four days in hospital, sort of related to the cancer but not directly.  On Monday I went to the local hospital to speak to a nutritionist and to get a dressing changed, and one of the nurses thought I looked so rough that she marched me down to Urgencias (A&E), where they did a few tests, kept an eye on me in observation for a while, and then admitted me onto the cancer ward. I spent the next three nights there. Basically, I was just a bit feverish and a bit dehydrated, but at one point the doctor used the words insuficiencia renal , which obviously translates as renal insufficiency—something kidney-related, though I didn’t know quite what. It certainly rattled a Spanish friend when I repeated the phrase to him. I'm not surprised. I looked up the translation, and “kidney failure” sounded quite bad. Apparently, there are stages, though, and dictionaries can be a little binary at times. It was just that my kidneys were a bit overstretched because I was vomiti...

Done it then. The prescribed treatment for my throat cancer and inflamed lymph nodes was three sessions of chemotherapy in Elda and thirty three sessions of radiotherapy in Alicante. Today I had the last session - everything finished. The medics tell me that I'll still feel sick, not be able to eat through my mouth, continue to have skin peeling off my neck, and whatnot, for a month or two yet. My next appointment with the oncologist isn't until 11 November (not at 11am) and the next time to speak to the ear nose and throat people who did the original biopsy isn't until mid December. But, for the moment I won't have to get up at 5.30 am to be ready for the ambulance to take me to Alicante every weekday and nobody is going to poison me with vile chemicals or bombard me with particles for a while. Of course nobody has suggested what will happen if it hasn't worked. I don't know whether they wade in with more of the same or if they give it up as a lost game and jus...

I wasn't going to do this again. Not for a while. In fact I have a very slight blog ready to go about ambulances, but a number of people have asked or sent me messages so, I'll do my best to make it short and sweet. Yet another update on me and throat cancer. Nothing has changed in the treatment stakes. I've now done 25 of the 33 sessions of radiotherapy. An ambulance collects me from home and deposits me back here a few hours later. It can be as few as four hours from start to finish and as many as six and a half. The treatment takes about twenty minutes and the rest of it is waiting or travelling time and the occasional medical Q&A. Yesterday the ambulance from Alicante brought me home via Biar. Locals can gasp and chortle.  I've done two of the three chemotherapy sessions. The third and, hopefully, final session is on Monday 14th provided that there is no medical reason for not going ahead - apparently things like anaemia, lack of platelets, reduced kidney functi...

My sister said that my nephew reads my blogs. He's just about to set off to Colorado because his new wife has a job there. So here's one to send him and her on their way. Just for those who haven't been keeping up, I have throat cancer. The Spanish healthcare system is looking after me. However, because the Region of Valencia is being run by a very right-wing local government, one of the insidious little side effects seems to be that lots of patients are being passed for care in the private sector. I suppose they natter as they play golf together. Of course, I may be completely wrong. It may be because the private hospitals have more capacity or because they're doing lots of two-for-one offers. The private hospital is for the radiotherapy. The thing where they strap me to a table and direct particle beams at the cancer in my throat and neck. The idea is that the rays damage the bad cancer cells but that my other cells are strong enough to fight back. Or at least that...

I left the last blog when I had done two or three sessions of radiotherapy down in Alicante at the private Perpetuo Socorro hospital. The chemotherapy in Elda still hadn't started because I am, apparently, veinless, and they couldn't find a way to get their chemicals into my blood. On Thursday of last week, they sorted that out by installing more permanent access to my bloodstream via a probe that leads to bigger, better veins in my chest. The same day, they spent four hours, first pumping saline into me, to make sure I was hydrated, and then pumping in some chemicals which, in my layman's understanding, are designed to be powerful enough to kill off nasty cancerous cells but not quite violent enough to kill me. It's all a bit of a faff. Lots of the days have been exceptions for one reason or another, but the process is something like this. I am scheduled for 33 sessions of radiotherapy. There is one session on each working day. I did number five today, so by my reckoni...

So, we left the story with me in hospital, being fed on gruel and camomile tea, having had a stomach tube fitted. The hospital kicked me loose on Monday with only two scheduled appointments for the week at that time: one with a nutritionist and the other with a cancer doctor, an oncologist—both in Elda. Because not everyone has the advantage of living in Culebrón, I should say that our local health centre in Pinoso (5 km away) is linked to Elda Hospital (25 km away), but sometimes, for specialist services, patients are sent all over the place. The hospital I'm going to in Alicante for the radiotherapy, Perpetuo Socorro, is a private hospital about 55 km from home. The nutritionist was a bit of a hoot. She gave us a box with 30 tubes to connect my stomach feeding tube to a pouch full of a Complan type food. That box was bulky but light. She also gave me a scrip for the feeding pouches, and the bloke in the chemist offered me a sack trolley to take those to the car. He also showed me...

Last June, that’s June 2023, I went to the doctor and said that I had the sensation of a lump in my throat. She felt around a bit, said it was probably nothing, but asked for a consult with a specialist from Ear, Nose, and Throat. In Spanish, that’s otorrinolaringología, and I’ve already got into the habit of saying otorrino, so that’s what I’ll probably use from now on. The request for the consult was ordinary priority. It took nearly a year for the otorrino to see me - May 28th this year, in fact. He shoved a camera up my nose and down my throat and recognized the potential for throat cancer straight away. He dropped some pretty broad hints to me as well. Doctors though, very seldom, give bad news until their experience is backed up with test results. He set the ball in motion. He ordered an MRI scan, a resonancia, and things started to move.  For the resonancia, the thing where you lie down in a big tube that makes a lot of noise while you try to stay stock still, the state syst...

Seventy days ago someone from the health service rang me to tell me that my routine poo stick test showed traces of blood. I saw the doctor a couple of days after that and, in the same week, I got some blood tests. Do you remember when dentist's used to give lollipops to children after fillings? Well in Pinoso Health centre they gave me a big box. "Oohh, laxatives, just what I've always wanted". The appointment for the colonoscopy was today at Elda Hospital. I was worried about what it might show but I wasn't at all worried about the process. This is the third time that doctors have thought I might have cancer and my concern was that, statistically, the odds must be shortening. So, the 54 hours of fasting and the Ajax like scouring effect of the laxatives passed off normally enough given the abnormal situation. Three young woman were in charge of setting up the patients ready for a colonoscopy. They told me to strip below the waist, to leave my socks on (so fa...